So they booted us out of the ICU today:) Good for them we weren't still there when I found out they put too small of a temporary tube in the G-tube site last night. What I mean is the temporary tube came out, so they replaced it with something else until the surgeons could aprove the permanent one being put back in. When they were discussing what to do they looked at me and clearly asked me what size she normally has and I firmly and assuredly anwered their question and they promptly out something in that was 2 sizes too small!! So, when the nurse attempted to place the permanent tube and it so apparently would not go in you can be sure I was not happy.
The result: Sedation in order to dilate the site to make it large enough to replace the permanent tube in hole that was large enough only hours ago thanks to...let me see...wax in someone's ears. Sedation always has risks, I can't go with her to hold her hand, and there will be residual pain in which she will need more ...which we are trying to get off of. BLAH BLAH BLAH.
The up side is she is getting some food and between suctionings she is talking and smiling. She went for a lap in her chair last night and got held by mom today.
The down side is there is no talk of time frame of release. The secretions and suctionings are relentless and I am TIRED. The smiles are keeping me smiling though.
Amy
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1 comment:
Thanks for the update! Glad to hear that she is smiling and things, overall, are going well. Too bad drs and nurses don't listen all that well...
We will keep praying!
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