- the battle
- sanity
- sleep
- weight (Allison's and Mine)
- time
- a precious childhood
- friends
- family
- dry eyes
- my mind
I/we also seem to be gaining
- weight
- friends
- adopted family
- prescriptions
- health issues
- bags (under our eyes)
- worries
- messy house
- Dr bills
- teary eyes
Let me explain something about how we feel about the damn frequency of all of this to everyone. We don't get used to this!! We just pick up our shit and deal with it because we love our kids and each other. It does some times feel that our friends and family become more numb each time there is a health incident because they feel that we/they have been there done that. Well, it is complicated and with a different set of circumstances each time. Each time Allison goes through stuff it gets more complicated and risky for her and we have to search for better/long term solutions. We also have to face that each time she gets sick she gets closer and closer to medically fragile.
The stress is taking a toll on both Jeff and I and as Keala gets older and smarter (the latter of which seems to happen faster than we can keep up) she is more affected. She doesn't like that sissy is in the 'owie house'. She is worried who will be with her when she wakes up. Jeff's vacation ends on Tuesday Keala will get stuck with a whoever, wherever 'substitute parent'. What part of that is hard? That Keala has to have a substitute, but for Allison there is no substitute.
Tomorrow, more tests...Mom and Dad trade...Keala goes somewhere to play (joyfully I hope). One of will post the results as soon as possible.
Love,
Amy
3 comments:
I'm so sorry to hear about all that you are going through again.
What else can I say? If I can be of service to you, to help care for Kaela or anything please, please let me know. If you need any last minute help or anything, you can always give me a call.
Hi, my name is Stacey Johnson. You probably don't know who I am, (and that is totally fine) but I go to the Church on the Hill and have for about 10 years. Anyways, I sorta kinda met you guys at the Seeds of Hope Christmas party this last December. I was the crazy lady with the camera! I took the picture of your sweet little girl in the manger. (which was just about the cutest thing EVER!) My in-laws are Byron & Debbie Johnson. And they are on the see ya later/seeds of hope board. ANYWAYS...
Somehow I came across your blog, and I want you to know that my family is praying for your family, and especially for sweet Allison. I am blown away by the constant challenges your family faces daily. We have 3 girls in our family, from our 16 month old Peyton, our 5 year old Alex, and our 7 year old Maddy, and I know how busy life can be with an active toddler, but what I can't imagine is having the stress & worry you deal with raising a daughter who needs so much more. You seem to be doing a wonderful job.
I am going to leave my email address for you, because I honestly would like to be there for your family. With meals, or for just being there as a friend. And maybe my girls will become friends with yours too. its: johnson4@wbcable.net I totally understand if you are too busy to respond to this, but if nothing else, you now know there are 5 more people out in your community that are praying for you and your family.
Blessings to you, Stacey
I am frusteraded to tears for you, dear friend. Praying fervently that there will be some good winning really really soon.
love you.
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