Last night for the nurses :(

Well, it's Thursday night (Friday morning) and Allison's follow up with the surgeon went well and there really isn't a need to keep the overnight nursing!!! We havent had to use the suction machine in over a week, which means that she is able to transfer things from her esophagus to her stomach without a problem. Fantastic news ! Now comes the part where we have to figure out how to get the adjustable bed into her bedroom and listen for her in the middle of the night again. We've kind of gotten used to not listening for her since the nurses have been there and she's been out in the den. It's good that Jeff has the next couple days off to help get things figured out.
Allison is almost back up to pre-surgery weight, and appears to have grown some more also. We're still trying to figure out why she's not sleeping thru the night on a regular basis and why the increased doses of her meds didn't help that problem. Guess it's back to the neurologist to see if her seizures are increasing or if she's just built up tolerance to her meds.
Amy has still been really, really tired even after a visit to her cardiologist and an increase in her pacemakers rate(up to 70 bpm from 60 bpm). There are a couple of schools of thought floating around about what the issue could be. Maybe she's in recovery mode from being on high alert for 2 months with Allisons issues, maybe she's going thru a little spell of depression, or maybe it's an issue with her heart. The next thing we will try for her is to turn on the reactive portion of her pacemaker and see if that helps. That mode reacts to movement and automatically bumps the rate up to an exercise rate. Keep her in your prayers these next few weeks.
Keala is starting to pull herself up from tummy to knees to standing! It wont be long and we'll be chasing her all over the house. She is eating like a horse and growing like a weed! Can't believe she'll be 10 months old in a week or 2. She's learning how to use some sign language and signing "more" and "finished" and "eat" and "milk" and using them on a pretty regular basis. That and she's already using a couple words too. She's an amazing little girl!